Ready for the looney farm

We just left for TN for the Christmas holidays. Packing the van has literally been mission impossible. I always made fun of families with the really huge vans loaded down with luggage and kids.......who is laughing now? Anyway, I will be ready for a beer at the end of this day.........:-D

JB

Happy Days Ride Again

Audrey's bag is packed and she's ready to come home. I'm just waiting for the discharge paperwork. Austin is busy eating dirty gloves in the waiting room and stressing his Mommy out. Macy is at Daisey's tonight so I hope we get home soon so we can relieve our neighbor who is watching her. Thanks to everyone for your prayers. Keep the prayers coming, she is still fragile and susceptible to other nasty bugs........

JB

Improving

Audrey is continuing to improve today. I'm staying with her tonight so she won't wake up scared. She had a rough morning yesterday so I don't want them doing anything foolish because they don't know Audrey's special little ways. Shannon and I were having a pity party earlier today about how unfair this situation is and how are Christmas may be dappened once again this year and then suddenly reality struck in the PICU.......two children died here today. That's two families that will probably experience their most difficult Christmas ever after burying their child. This puts things in perspective and you quickly realize that someone always has it worse than you. There is not really a good way to describe the anxiety and loss of control you experience when you have severely ill child, but it can't compare to the loss of that child. So I'm feeling thankful this early morning that my little girl is improving and that God is watching over her. Take nothing for granted.........hug your little ones a little tighter today.

JB

Audrey having some trouble.

I hate to write to let you know that little Audrey is in the PICU at UNC. I had to call 911 to the house early Saturday morning when Audrey developed severe respiratory distress. Everybody has been sick in the house since their birthday party, but Audrey got it worse. They are thinking that she has a viral pneumonia, but are treating her with antibiotics just in case. She was negative for RSV, Influenza, and adenovirus. She is doing pretty good right now, and is on oxygen via nasal cannuli only. They were doing a continuous EEG last night on her to make sure she wasn't having seizures. I don't think she is, but the last time she was sick it pushed her over her seizure threshold so I guess it's better to air on the side of caution. Regardless, this is a setback. We were planning on going home to TN next week, but all deals are off now. This is just bringing back bad memories from last Christmas. Please pray for this little girl. I can't say enough on how tough this little girl is..........

JB

Audrey and Austin's Birthday Party

Hey, we celebrated the twin's one year birthday party last weekend. We had a great turn out, and the twins were on sensory overload. Shannon and I would like to thank everyone for coming and celebrating these little miracles. Hondo almost ate his entire cake or was wearing it so if he ever develops diabetes then I can trace it back to this one event........:)) Audrey was really alert the first half of her party and decided to go to sleep when it came to the cake, but she had a great day also. Their first year has been full of challenges (especially for Audrey). We are thankful for everyone's help, love, and prayers and look forward to many more birthday parties! Enjoy the pictures.........

JB

We're in Trouble

You probably think this is strange..........it is:)) I'm just adding it for my cousin Lisa who has adopted this song after a night at the Rocky Bottom! Thanks for letting me mooch from you and Scott during the past four months. I've had a blast!!

JB

Hello, just checking in again. Things are well at the Burk house. Audrey is teething right now so she gets fussy at times. I've got the Thanksgiving break coming up so I'll be heading back on Wednesday afternoon. We have just a few days left so the end is near. The course has been good, and I have managed to just about finish my master's while I'm here. I'm putting off writing one of my last assignments to write this blog.........procrastination, maybe:))) I was driving back to D.C. last night so I had a lot of time to think about things and how the Burk family dynamics have changed in the past year. We have a lot to be thankful for with everything we have been through, and I have a new appreciation for families of special needs children because we are part of that group now. One of the drawbacks and things that upsets me is how people react to little Audrey when we are out in public. Audrey breaths loud at times and has a lot of secretions sometimes so people have a tendency to stare. This is especially true if we have to suction her out. I understand the curiosity, but I don't understand the the gawking, asking ridiculous invading questions, and talking about her as if we can't hear their comments. I guess I can react in two ways: educate or explode. My personality make-up leads me to the latter, but this won't fix the issue. The issue lies with me and accepting that human nature will be human nature........the good, bad, and ugly. So I submit that there are a lot of ugly people in this world that really don't appreciate what they have been given and that sometimes things happen that make people different. This will get better with Shannon and I as time passes, but it is still a hard pill to swallow. I don't think there has been one event that has led me to expressing myself tonight, but it has been a culmination of ones. So the next time you see a family that is different from yours please show some courtesy and understanding. I would like to end by wishing everyone a Happy Thanksgiving! Again, we have a lot to be thankful for because Audrey and Hondo's one year birthday is coming up!

JB


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Now playing: Seven Mary Three - Lame
via FoxyTunes

Audrey is really doing well right now. She has had two appointments this week with opthamalogy and EENT. Her vision appears to be improving and her PE tubes are good to go. She has had a fever here and there with teething, but not unlike any other child. Please continue to pray for her that she stays healthy and continues to make small developmental milestones. Her progress is measured in very small slices, but she continues to improve. On another note, I have about 3 1/2 weeks left in D.C. so the course is winding down nice. Bragg is awaiting.........

JB

From The Burk's Happy Little Blog

Doodle Bug

I wanted to share my latest project. It's a 1970 VW Bug. It's in good shape for it's age. Talk to you later......

JB

Last Thursday our staff college group went to Gettysburg for a staff ride to discuss the battle and how the leadership lessons apply today. Anyway, it was great experience while sobering at the same time. I believe there was over 36,000 casualties in just three days of battle. Can you imagine that today. I've included a lot of pictures here so if you're interested then check them out......

JB

We hope everyone had a safe and happy Halloween. We had a good time, but man was it stressful getting everybody ready to get out the door. Austin and Audrey were fussy all the way up to getting ready then they just conked out and slept. We walked maybe a mile in the neighborhood (yes, we have a very large neighborhood) and Macy got tired so we headed back. Earlier in the evening, little Austin took a tumble out the front door when Macy accidentally opened the door on him so he is sporting small abrasions to his head...........good times. Anyway, enjoy the pics.

JB

Shannon and I went my boss's Halloween party last night. We had a great time and even managed to do the "Burk cheer". I hope there is no video copy of the debacle that it was.........nothing like a big white guy with no rhythm. Anyway, I've included some more pics. Beetle juice is my favorite......:)) On another note, is it just me or are you ready for this election to be over? There are enough empty promises to go around shredded in lies from both parties. Regardless, who ever wins is going to inherit a big bomb. I better mute myself before I go on.........I'm supposed to be apolitical..:)) Later......

JB






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Now playing: Kenny Chesney With Mac McAnally - Down The Road
via FoxyTunes

Audrey is hanging out watching Clifford the Big Red Dog today. Shannon told me she has had a really good day today, and she has been super alert. She has been cutting teeth the last couple of weeks, and it has been really painful for her because she can't grind her gums and chew on things. Sometimes you don't know what to do for her which makes you feel kind of helpless which doesn't sit well with my personality. Anyway, just keep her in your thoughts and pray for more days like today!

JB

Another picture from the fair.

Fun at the fair!

Shannon and I took Macy and Bailey to the Ft. Bragg fair on Saturday night. The girls had a great time, and I am painfully aware that I can't ride the rides like I used to ride. I thought I was going to hurl on the girls once or twice. Shannon's Mom watched the twins so we were glad to have some help. I'm still driving back and forth during the week and have about 9 weeks left in class. In other news, my cousins Kathy delivered her twins recently. We are terribly happy for them and let the sleep deprivation begin.......

JB

Update on the twins

I just wanted to add some recent pictures of the twins. Audrey is doing fairly well right now, and Austin is getting Hondo size. Keep your prayers going for little Audrey. She's definitely got a little personality, but she has a challenging road ahead of her.

JB

Pretty cool!

We visited Quantico today and checked out the Marine Corps museum. I have to admit that it was pretty impressive. I don't think the Army could do anything this nice.

JB

Bucktooth Beauty

Macy is really starting to lose all her baby teeth. She'll appreciate this pic when she is a teenager.......:-D

JB

snaggletooth

We are celebrating Macy's 6th birthday today. She's about to lose her front tooth also.........nice pic.

JB

Hello everyone..........Audrey has had a really great two days and we are so thankful for all the blessings we have received for her. She continues to fight and improve every day! Keep the prayers coming. On another note, I have been checking out different types of vehicles that are more safe since I have been in the D.C. area. I've included some stuff I'm really interested in.........let me know what you think.

JB

Hello, I'm back. Things are going good at the Burk home. I'm still commuting each Friday from Washington. My class is going pretty good. We were on television (CSPAN) earlier today attending a terrorism briefing at GWU. It was pretty interesting seeing some guys shaping our policy at a big level talk to students and reporters. Audrey had tubes placed in her ears about two weeks ago. She is doing fairly well, but she did get an infection in her left ear after the procedure. She actually sat up on her own without assistance for about 20 seconds this past Saturday. This may seem like no big deal, but it's pretty huge for our little girl considering everything she has gone through.

I'm attaching some pictures of her doing this, but I didn't get the good shots when she was midline and looking at her mommy. Austin is a total mess. He is crawling around everywhere and trying to pull himself up so it's all over but the crying............HONDO is mobile. Macy is enjoying first grade and Shannon is juggling a thousand things each day holding down the house.

I got to spend some time with my cousins, Lisa and Matthew last week. We had a great time so I plan on hanging out with Lisa and Scott more over the next couple of months. I'm still trying to link up with my other cousin Terry who lives in the Washington area. That's about it for now.......time to go to sleep.

JB




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Now playing: Jason Mraz - I'm Yours
via FoxyTunes

Mouth of the Potomac

I have made it to Ft. Belvoir okay. Keep Shannon in your thoughts as she holds down the hacienda. I need to find my cousin Lisa's phone number. I'm meeting Shannon and the kids at the beach this weekend. I hope everyone has a safe and happy Labor Day.

JB

Living the dream with Kenny

Daddy's Girl

Audrey continues to do well. We hope everyone enjoyed the pictures the other day.

JB

Hello everyone. Sorry there hasn't been an update in awhile, but things have been going pretty good, and we just wanted to enjoy the moment. Anyway, we finally had some formal pictures taken of the kids this past Saturday. I'm including a slide show for you to see. You can go to our pictures and download anything you want. The pictures turned out really good. Talk to you soon.......

JB

Fun at the beach!

All is well at CB. Macy and her cousins are having a blast. We got both of the twins out to the beach and they did really well. I'll upload some pictures later.

JB

The weekend is here and things are going much better. Audrey came home Wednesday night from the PICU at Cape Fear Valley. She's finally settled in at home and things are slowly getting back into a routine. Audrey is still getting adjusted to some of her new medications so she is kind of sleepy throughout the day. She's had no seizure activity for about 8 days, and her respiratory status is probably the best it has been in a very long while. We had some issues with her new mickey button leaking her formula all over the place so we were concerned because she had lost an entire kilogram while in the hospital. I messed with the button today for about an hour, and I have finally got it straight. When in doubt just remove it......and put it back in.......:)) We're heading to our beach house tomorrow to some long awaited rest. This will be the twins first trip to their beach home so we're excited to get them in the salt air. As always, Macy is totally pumped and has list of favorite things to do when we get there. All of Shannon's family is meeting us down there so it should be a great time. Shannon and I certainly appreciate everyone's prayers and concern. I would also like to thank all of Audrey's Angels, the Cape Fear PICU nursing staff, for providing her such wonderful care the last three weeks. I will send updates of our beach outing via my blackjack this coming week to show what mischief the twins and Macy get into..........Thanks again for everyone's prayers!

JB

Can somebody turn the light out?

Austin has been patiently waiting for his sissy to come home. He's taking a nap in the waiting room in this picture. Audrey has had three good days in a row. We are hoping to get her home soon.

JB

"On the mend"

Audrey has had a pretty good two day stretch. She is improving on both fronts. Her oxygen demands have been greatly reduced (she's on .25 lpm), and she has had no real seizure activity. Aunt Ally and Uncle Jeremy along with a tornado named Brady are visiting now so it's good to have family assisting. Austin and Mace are doing great and enjoying the pool almost everyday so we're trying to maintain normalcy. Overall, today is a good day.

JB

Parenting: Hang in, Hold on, Hug Tight


The words above are placed on a picture that we hang in our kitchen. I think we received it during one of the twins baby showers. I just thought it was cute at the time and didn't think too much about it until after everything that has happened to Audrey. We have been on such a roller coaster ride with Audrey that Shannon and I ask God, "why me and why Audrey?" I really don't know the answer, but why not us? We always thought this was a situation that happens to someone else and not you. You would kindly spend a brief moment emphathzing with that family or say a small prayer and then go about your day. Unfortunately, we're that family now and we must move forward no matter what happens.
I consider myself to be an extremely positive and optimistic person, but I have to tell you it's hard sometimes especially during days like today. Audrey is having seizures now more frequently, and they're trying to get them under control. However, the pneumonia is getting better. I was extremely frustrated the last couple of days because the hospital was not keeping us informed very well. I felt that we were in a stall pattern with very little information being passed. I think I have effectively fixed that now and feel fine with the plan of care. You will always be your child'd best advocate, and you should never put blind faith in a system like healthcare for your child. I feel confident that we have come to an understanding now.
Being a parent of a special needs child is probably the most difficult thing we have experienced. Recently, we met a parent of a special needs child. She was very nice and infomative, and she greeted us by stating, "welcome to the club". You know, I really don't want to be in this club. Nobody asked us if we wanted to join, and the membership dues suck. I'm rambling now, but if you haven't figured it out yet this blog is my therapy. Keep the prayers for Audrey coming, she's a fighter.



JB

A little stronger.

Audrey is making small improvements each day. They are trying to wean her oxygen demands. She has had a few seizures in the PICU, and they have adjusted her meds to counter them. It looks like she'll be here for several more days getting antibiotics. Keep the prayers coming.

JB

Making Progress

Audrey is improving. She's wearing a head turbin because she's getting a 24 hour EEG. She's going to be getting IV abx for the next week to ten days. She's definitely has my mom's stubborness. Keep her in your prayers.

JB

Hanging with Nemo

Audrey was extubated as planned around lunch time today. She's breathing much easier and being loved on by her Momma. We are very excited, but guarded because her condition can change quickly. They have ordered a 24 hour EEG because of a concern of possible seizure activity. We'll take the good with the bad, but today has been a good day.

JB

A different day.

Audrey is doing a little better today. She had a bronchoscopy performed earlier this morning, and they removed a bunch of the mucous plugging that was jamming her right lung. She certainly appears to be breathing easier on the ventilator. The plan is to extubate her later today if all goes well. They have changed her antibiotics to give her better coverage, and the nurses are doing a great job of caring for her. She is a fighter so please keep the prayers coming. We have so many people concerned for this little girl so I'll keep all the updates from this blog. Forgive us if we don't return calls, but our focus is on her right now.

What next?

Audrey is doing worse and had to be intubated yesterday. Her pneumonia on her right upper lobe has not gotten better, and she was really working to breath. They have her sedated while she is on the ventilator so she is breathing much easier. I really don't know what else to say........we are just numb and don't understand why this is happening to this precious little girl. Keep the prayers coming.

JB

One more day in the PICU

Audrey continues to improve. She's sleeping pretty soundly in my arms right now. More to follow......

JB

Update! She's getting better.

Respiratory status improving.........she's on the upward glide.

JB

Little girl needs some help.

Audrey has been admitted to the PICU at Cape Fear Hospital. She developed some severe respiratory distress yesterday and just happened to have an appointment with the pulmanologist. She had a rough afternoon but did well through the night and this morning. Please pray for this little girl. She doesn't deserve this. Shannon and I are mentally and physically exhausted. I'm on emergency leave for the rest of the week, and Mrs. Craig is driving in today for reinforcements. I'll send more updates as they happen.

JB

Let's go for a ride!

Sooooooo Tired!

I couldn't resist from taking this pic of the twins. They just returned from a trip with their Daddy so I left them in place so I could get some stuff done. Later....

JB

The twin turf battles begin!


Hello everyone. Just checking in with more pictures and letting everyone know what's going on with us. We got some bad news earlier today with the passing of Shannon's grandmother, Mimi. She's at peace now and lived a full life, but it certainly doesn't make it any easier. Shannon will be traveling to Wilmington on Thursday for the funeral service. I'll have to ask off from work to watch the kids. Audrey had an Opthalmology appointment at Duke today. The doc told me that the anatomy of her eye looks great (optic nerve, pupil, etc.). Audrey was looking around in her office and the eye doctor stated that she is seeing things, but the nature of Audrey's injury is that when her brain cooperates everything is okay and when the transmission isn't received then she's visually impaired. The definition of what she has is cortical visual impairment in case you want to look it up. Anyway, she is definitely checking her surrounding out a lot more now than ever which is a great blessing. Macy had her first T-ball game on Saturday, and she did great. She smacked her first pitched ball down third base for a single and hit off the tee for her second bat and did great also. It was hot as blazes on the field. Shannon and I got sunburned and the twins were wiped out from the heat sitting in their stroller. I've included a lot of pictures on this post. If you get this posting by email you will have to check our main blog site out to view all the pictures. Keep the prayers coming for Audrey!!! Later.........

JB

The twins have their sun hats on and are ready to go! I've also included some pictures of Austin from this morning. He's doing a pretty good job of holding his bottle now. Pretty Boy!!!

JB

Hey guys. The week is over..........thank goodness. We had a Joint Commission inspection at our hospital this week..............it's time to drink a beer!!! The organization and our department did well so I'm pretty proud right now. Macy is having a sleep over with her cousin Bailey this weekend so we're down one crumb snatcher. We just found out that my first cousin is expecting twins this week which is pretty exciting. They better start storing up energy and savoring sleep as they know it now...........:))I'm including a recent picture of Grandfather Mountain as we we're traveling home awhile back. It's definitely a scenic drive home using the back roads. Talk to you soon.............

JB

Hello everyone! Sorry for the long absence, but we get so caught up in everything that there is not enough time for it all..........:)) Everyone is doing fine here in NC. Austin is doing great and Audrey continues to make small improvements. Macy is almost done with Kindergarten which is really hard to believe. I'm going to make this quick because everyone is wanting to see pictures. I've uploaded some pictures of Austin and Audrey that I have taken in the last couple of days. They've come a long ways, but please continue to pray for little Audrey. She is looking at us now which is another blessing! Talk to you soon...........

JB

March Madness

Hello everybody! Sorry it's been awhile, but everyone is doing fine. We're actually driving home to TN as I write this note. The twins are doing great as Audrey continues with her multiple therapies. She's definitely breathing easier and becoming a little more interactive. I went to the first round of the NCAA's yesterday. We saw some great games. Talk to you soon.......

JB

Hello everyone. Sorry for the long delay since my last blog, but things are always so busy. Everyone is doing well here. Audrey has been home from the hospital for over two weeks and is doing well. She actually went out on her first public outing this past weekend. We took her to Macy's final basketball game and party. She stayed awake the entire time, and we even took the twins out for a walk afterward. Austin continues to chug along. He's getting bigger all the time and is sleeping for about five hours during the night. He's well over 13 pounds now, and Audrey is approaching 10 pounds now. We'll know for sure on Friday when they have a nutrition appointment. Audrey seems to be visually tracking better now. She had a tendency to favor her left side but is now looking left and right. She's also doing well with her other therapies. Last week she started rolling over. She even did it more than once for the therapist and had good head control. She definitely cries when she wants to get your attention along with her brother! We have a RN that comes to the house during my work week from 2300-0700. Her name is Kathleen, and she is really great to little Audrey. We're most appreciative because I can get some sleep at night.

Audrey has a series of follow-up appointments at Duke next week. I think I have to drive up there three times in the same week............good times:)) BTW,Shannon's birthday is this weekend. The old lady turns 34..........six years to 40! Cuts like a knife........That's all for now. I'll try to send some recent pictures later.

JB

Nana and Aunt Allie to the rescue.

Audrey is home and doing great. Shannon's Mom and sister spent the weekend with us to lend us a hand. Talk to you soon.

JB

Coming home today!

Audrey is coming home today. Shannon and I are on our way to pick her up. The doctors wanted to make sure she was totally good before she heads home. Audrey is really growing now. She is over 8.5 pounds and is almost the same length as Austin. All her therapies are starting back up this coming week. We're definitely excited so please keep her in your prayers.

JB

Sweet Boy!

Austin just wanted to say hello, and wanted everyone to know that Audrey is getting better each day.

JB

Hhmmmm....I'm thinking hard here.

Audrey is doing much better today. She's breathing easier and she is gaining weight. Keep the prayers coming!

JB

Hey guys. I'm sorry it's been awhile since I last updated everyone, but things have been so crazy, and we are literally so worn out I haven't been motivated to much of anything except get through the next day. Since I last updated everyone Audrey had come home from the hospital and was doing fabulous at home until Monday morning. I think she got a mucous plug deep in her lungs and couldn't clear it. Luckily, she was already at the hospital getting a nutrition consult and Pediatrics saw her immediately. So, she is back as an inpatient in the hospital. She had a rough day on Monday, but is doing great now. She no longer has an oxygen need, but the physicians and us want to make sure she is good to go before we bring her home because we don't want her right back in the hospital. A pulmonologist (lung doctor) consulted with Audrey, and he said that it is not uncommon for premature babies like Audrey to still have remnants of the RSV for weeks even months after the initial exposure. So it is definitely a roller coaster. It's just so hard to process that one day she is doing so great and the next day she is in full respiratory distress because of a crazy virus. We expect her to be in the hospital for at least the next day or two. Our insurance company has approved us to have a RN come to the house at night to monitor Audrey so we can get some sleep. This is really great news because I literally have been going on about 2 hours a sleep a night either because I've had to suction this crud from the RSV out of her lungs or just readjust the pulse oximeter that measures her oxygen saturations. Most of the up and down at night is nerves because we are so worried about her but this is no way to live without going crazy. Anyway, bottom line is that Audrey is getting better and preparing to come home and we have help now. I just need to work out the details with the nursing agency to find a good fix of who we are going to let in our home and care for our daughter. Austin continues to do great. He got his two month shots yesterday and did well with them. He weights 10 lbs and 10 ounces now which is awesome. He is definitely living up to his nickname, Hondo........:)) Macy is doing well also. She has a couple of more basketball games left in the season and we're either going to get her in dance or soccer again. That's all for now and I'll try to keep everyone more up to date as time passes. Please forgive me if I don't call family back, but our time is stretched so thin that when we finally settle at night it's more of a collapse than a settle..........later.

JB

She's a fighter!

Audrey is doing much better today. She's almost completely off oxygen. She's also crying quite a bit now which is great to hear and will help her get better quicker. Keep the prayers going.

JB

A Step Back

Hey everyone, Audrey had a rough day yesterday evening and experienced some respiratory distress. I had to call an ambulance at home to take her to my ED. She's been diagnosed with RSV which is a nasty bug for little ones. She's was admitted to the Pediatric floor at Womack and has stabilized a lot now. We're doing supportive measures for her as this virus clears her system. Please pray for this little girl, she has been through so much. I'm staying with her at the hospital and will send updates through my Blackjack.

JB

Hello everyone. Sorry it's been awhile since I last updated the blog, but we have been going non stop. I don't think it ever ends......:)) Audrey continues to improve almost daily at home. She cries and coughs quite a bit now. She even is starting to grunt around like little Hondo which is great. She really starting sucking on my little finger tonight while I was giving her G tube feed. Austin, aka Hondo, is doing fantastic. He weighed 9 lbs and 10 oz at the doctor's office on Tuesday. Audrey is even starting to chub up also which we're totally pumped about. The Speech Therapist came out to the house today for her first visit. It looks like she will be here twice a week. We're still waiting for OT and PT to start. Not a whole lot else to update everyone on other than she continues to thrive at home. Please continue to pray for her and our family. This journey is going to be a long one, but today is a good day.......

JB

Future Lady Vol

Pat Summitt was scouting Macy today at her game. Girlfriend is working on a scholarship.

Audrey is finally home!!!!! We got home on Wednesday afternoon, and things are overwhelming to say the least. Audrey seems to be doing a lot better at home. We had to take her to a follow-up appointment at Womack today. We're getting glued in to all the therapy and follow-up visits that she will need in the coming months. So this little girl will get everything that she will need. We've tried to put her and Austin together as much as possible, but we're having them sleep in different beds because we are having to suction Audrey about every 2-4 hours and don't want to disturb the little man too much. The only medicine that Audrey takes is a multivitamin with iron, and we are feeding her through a G tube every four hours. She's taking 3 ounces and seems to be do well with the feedings. We just really need to pack the weight on the little girl. She's gained weight just about everyday the past 7 or 8 days. She weighed 6.4 lbs at Womack today. Austin continues to do great and is our little chubster, and Macy is very helpful to Mommy and Daddy. Shannon's family is coming tomorrow so that will be a big help. Shannon and I just need to make sure that we take care of each other as well as the other little ones. That's all for now, but please continue to pray for our family especially little Audrey. I want to a say a big thank-you to the Angels that cared for Audrey at Duke. Ashby and Melissa were a godsend to our family, and we will never forget the love and care you provided Audrey. Talk to you soon.......

JB

Hard Work

I'm hard work, but I'm worth it!

Big Sister and Little Brother

Macy is really enjoying being a big sister.