Saturday, March 21, 2009
Sunday, March 15, 2009
Mickey Buttons and Family Fun
Hey everybody,I hope everyone had a good week. It was beautiful during the work week and got up into the 80s. It would be Murphy's law that it is cold and rainy this weekend. I had no time to work out during the week so I'm running in the rain.....good times. Allison, Jeremy, and hurricane Brady are visiting this weekend. It's great to have family visiting, and Macy is terribly excited. We're going to cook out tonight and sit back and hope the Volunteers clinch the SEC title. The Bucs are already in so we're hoping for a good March Madness.
Little Audrey is doing well, but we continue to have issues with her mickey button. It remains very positional and leaks if it is stressed. UNC Hospitals has given us an option to admit her to the facility and take the mickey button out. They would leave it out for 1-2 days and let the stoma shrink. This sounds like a reasonable plan, but I don't want her in a hospital right now. So I going to start taking it out for a few hours at a time in between feedings so it will draw the stoma up. Another trick that I have done is putting a small Foley catheter into the stoma. This shrank the stoma up quite a bit, but not enough. I was a little hesitant about the length of time of leaving it in but this is a learning curve. I know I'm rambling, but there a people that read this blog that have children with Mickey buttons so my thoughts may be helpful. A huge no go that we did with Audrey's Mickey button is that we placed a larger size into the stoma when we initially changed it out because it was leaking. This only made the stoma larger and we have been chasing our tail ever since. If your health care provider doesn't understand Mickey's then find someone who does. I've been an ER Nurse for almost 15 years and this has been a learning experience for me. Anyway, that's my deep thoughts by Jack Handy today.......later.
JB
Little Audrey is doing well, but we continue to have issues with her mickey button. It remains very positional and leaks if it is stressed. UNC Hospitals has given us an option to admit her to the facility and take the mickey button out. They would leave it out for 1-2 days and let the stoma shrink. This sounds like a reasonable plan, but I don't want her in a hospital right now. So I going to start taking it out for a few hours at a time in between feedings so it will draw the stoma up. Another trick that I have done is putting a small Foley catheter into the stoma. This shrank the stoma up quite a bit, but not enough. I was a little hesitant about the length of time of leaving it in but this is a learning curve. I know I'm rambling, but there a people that read this blog that have children with Mickey buttons so my thoughts may be helpful. A huge no go that we did with Audrey's Mickey button is that we placed a larger size into the stoma when we initially changed it out because it was leaking. This only made the stoma larger and we have been chasing our tail ever since. If your health care provider doesn't understand Mickey's then find someone who does. I've been an ER Nurse for almost 15 years and this has been a learning experience for me. Anyway, that's my deep thoughts by Jack Handy today.......later.
JB
Sunday, March 08, 2009
"Roger, Houston. We have reached advanced maternal age!"
Sunday, March 01, 2009
"Audch Baudch"

I wanted to send a quick photo of Audrey today. Shannon has given her the nickname of "Audch Baudch" and it has taken hold. She looked too cute with Curious George. We will soon be fitting her with braces for her legs which is exciting. She continues to do well in therapies.........
JB
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