All is well!

Audrey is doing great after her procedures today. They are keeping her overnight just to be safe. We're just hanging out watching cartoons. I'll give a full report of what they found when we get home.

JB

Audrey's at UNC today

Audrey just went into the OR. She's was doing fine this morning, say a little prayer for her. I will update everybody when she comes out.

JB

Errand Day

I'm chilling in the waiting room of the Honda dealership waiting for my car to be serviced so I thought I would update everyone on our world and catch up on other blogs that I follow. I'm heading to the grocery store and Lowe's after this. Shannon has become very uncomfortable and not really able to shop for groceries so I get to pick what the Burk family eats.......:)) You can never grow tired of pizza and cookies, can you? We had a bit of rough night last night. Audrey had a seizure for the first time in several months. It happened around midnight last night, and we got really engaged pulling her through the rough patch. It's just a scary thing regardless of what experience I have of seeing your child turn blue. Audrey has a neurology appointment on Tuesday, and we need to increase one of medications. She is growing like a weed, and we have had her on the same dose for over 9 months so last night is a definite sign we need more on board. She's doing fine this morning so we'll watch her a little closer this evening. I write about this because it's just another slap in the face of what our new normal is like.
On another note, we finally chose the contractor that will renovate our house in the coming months so we are excited about it. I'm going to have to remove some trees in the back yard first, and I got to contact our HVAC guy to see if our unit will handle the addition. I also got my official deployment orders yesterday. I will heading out the last week of July so that means the rest of the Burk family will be heading to Grazing Meadows at the beginning of July. We have a lot to do, but it will be another adventure for our family. Audrey has her procedures on Thursday so please say a quick prayer for that everything will go okay...........talk to you soon.

JB

Dispatches from the Sand Hills

Hey guys, I hope everyone is well at their respective abodes. The Burk house is lively as always. There are a lot of moving pieces going on right now so it's good that I post on the blog tonight so I can remember and track them all....:)) We've got some good momentum brewing with lining all of Audrey's care in Tennessee. I was in touch with the early intervention folks from the state and feel comfortable that everything will work out. Audrey continues to do pretty well right now. She had a swallow study performed this week at UNC, and she did swallow some which is great news. However, she did aspirate when we got to the thicker substances so they quickly ended the tests, but we definitely have something to build on with her. Our short term goal is that she swallow enough to control her secretions, and we'll take the food stuff later. She's got some procedures coming up in about two weeks so please keep her in your prayers. She'll have to spend a night at UNC after everything is done so we are trying to coordinate everyone's schedule to accommodate.
Shannon is almost 33 weeks along now which is absolutely crazy, but terribly exciting. I promise that we haven't converted to Mormonism and certainly didn't plan on raising a fire team, but the good Lord has his own plans for us......:)) Along that same theme, I found out for sure that we will be in NC for at least 2-3 more years this week so we will be renovating and expanding the house while I'm deployed this summer. We're looking to add about 500 square feet and gut the kitchen so we can have more space and functionality. We certainly need the space..........
Macy and Austin are doing great and growing up more everyday. Austin is busy doing head gainers everyday and Macy is in full swing with T-ball again so we are truly fully engaged in the Sand Hills of NC. Talk to you soon..........

JB

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